A registry is a collection of data about individuals with similar characteristics—in this case, individuals with Down syndrome. By filling out a profile and contributing information, individuals help complete the picture of the community. In return, registration typically offers access to information about new treatments and trials and education about Down syndrome, and may even provide access to local and regional resources.

You can help advance Down syndrome research.

If you are interested in participating in research or becoming part of a registry, the links below offer many options as well as resources. 

• myDSC - Lumind Down Syndrome Foundation

• DS-Connect - National Institutes of Health (NIH)

• Linda Crnic Institute for Down Syndrome

• MIND Institute - UC Davis Health

• Presentation From Down Syndrome Research and Treatment Foundation, November 2nd, 2013, Cognition Research Update – Sarah Wernikoff, DSTRF Board Chair

• Developing Therapies to Improve Cognitive Abilities of Individuals With Down Syndrome – Dr. Craig Garner and Dr. Craig Heller: Part 1 & Part 2

• Presentation on Therapeutic Strategies for Cognitive Dysfunction in People with Down Syndrome – Almad Salehi, M.D., Ph.D

• "Understanding Research and Findings Associated with Learning and Memory" by Dr. Craig Heller, May 31, 2017 at Down Syndrome Connection of the Bay Area (PDF of slides)

• DSC2U – Down Syndrome Clinic to You
  • Personalized health and wellness information for families with a loved one with Down syndrome.   
  • Click here to download a presentation about DSC2U